CARLY VOICE BOOK

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Carly's Voice: Breaking Through Autism and millions of other books are available for instant access. Carly's Voice: Breaking Through Autism Paperback – September 18, This item:Carly's Voice: Breaking Through Autism by Arthur Fleischmann Paperback $ Start by marking “Carly's Voice: Breaking Through Autism” as Want to Read: At the age of two, Carly Fleischmann was diagnosed with severe autism and an oral motor condition that prevented her from speaking. Carly’s Voice by Arthur Fleischmann with Carly Fleischmann is another. Carly's Voice by Arthur Fleischmann - In this international bestseller, father and advocate for Autism awareness Arthur Fleischmann blends his daughter Carly's.


Carly Voice Book

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One of the first books to explore firsthand the challenges of living with autism, Carly's Voice brings readers inside a once-secret world in the company of an. In Carly's Voice, her father, Arthur Fleischmann, blends Carly's own words with his story of getting to know his remarkable daughter. One of the first books to. Listen to Carly's Voice: Breaking Through Autism audiobook by Carly Fleischmann, Arthur Fleischmann. Stream and download Book Rating (1). 1 2 3 4 5.

The book is a slog, to be sure: And, while the Clearly I am in the minority, but I really disliked this book. This quote, from about a third of the way through the book, neatly summarizes Arthur's attitude toward Carly before she is able to demonstrate that she can communicate in a way he values: Autism, tantrums and neediness. When you raise a severely disabled child, you begin see the flaws above all else. I don't see my kids as flawed, at least any more so than myself or anyone else.

They were born with bodies that make their lives far more challenging, but flawed? Language choice aside, a child with autism, is not autism, full stop, and I feel heartbroken for the child whose parent can't see beyond that and celebrate their strengths as well. Yet Fleischmann—after recounting what he characterizes as sweet, funny childhood moments of Carly's siblings—shares that he can't pick a single moment from Carly's childhood where he felt enchanted by her in some way.

I read a wonderful quote recently, attributed to Ellen Notbohn: I know first hand how challenging it is to raise a very complex child, but there is so much more to our kids than their struggles.

As parents, we need the freedom to share how those struggles shape our experiences, not only to find the sense of connection, belonging and understanding often found only with other parents who are or have been there, but also to help the world at large understand, and value and thus make room for our kids.

That said, we owe it to our kids to safeguard their dignity while we do, and I think this book falls short in that regard. The second half of the book is less problematic: Fleischmann comes to value his daughter once she is able to share her world in a way he struggles less to understand, and as he gets to know her, he becomes less self-centred and certainly more empathetic.

His storytelling becomes a little more natural in the second half, and so slightly more readable, but I will confess that by the time I got there, I was ready to skim; and skim I did, pausing here and there to read more reflectively where Carly's letters to Ellen and others were shared. It was refreshing to finally get to Carly's chapter, and I won't spoil it by sharing any of it here, but the opening paragraph had me laughing hard. There is a passage in the book where Carly laments people treating her like she is dumb and here you can see the extent to which Carly herself has internalized this message.

I feel reasonably sure he would still be steeped in resentment toward her, and that, I find heartbreaking. View all 8 comments. Apr 18, Valarie rated it really liked it Shelves: Although this isn't the most well-written book, it is definitely a must-read for anyone interested in autism.

The first half is a bit of a slog, but we need to read through the tedious medical testing, psychologists' visits, and hours of therapy in order to understand how amazing Carly Fleischmann is.

The sections she wrote are hilarious and insightful, and I commend the entire family for being brave enough to share their story with the world. Carly's father Arthur, who wrote the majority of the Although this isn't the most well-written book, it is definitely a must-read for anyone interested in autism. Carly's father Arthur, who wrote the majority of the book, is honest about the times he lost his temper, and Carly presumably allowed him to share her more embarrassing behaviors such as bedwetting and tantruming.

The honesty is necessary for readers to comprehend the daily struggle of autism, and we can then share in their triumph as Carly finds a way to communicate. Sep 26, Kristy Trauzzi rated it liked it. I thought the book was co-written. Or that it had more from Carly.

But it didn't. And that kinda sucks. For some reason when reading it I really didn't like the Dad. And I can't put my finger on why.

It wasn't because he tried to play "super dad" or that he got frustrated and yelled at because of Carly. I almost felt like he was writing it more for a financial gain than to try and promote either autism awareness or the AWESOME accomplishment that Carly was able to do. But, I can't really find I thought the book was co-written.

But, I can't really find a good reason for thinking that way, that's just how I felt. The one thing that was odd for me and I am tempted to tweet Carly to see if there is a response I probably won't. In her speeches she thanks her Dad, but not her Mom. And I'm not sure why she didn't. Was it an oversight? Her Mom did lots, plus she's "Mom" and I don't know.

It was weird. It's sad that children with special needs whatever they may be don't live to their full potential because their parents can't devote themselves or they simply can't come up with the finances to make it happen. View 2 comments. Apr 16, Joan Graves rated it it was ok. Arthur Fleishmann's treatment of Carly is disgusting at best. Carly is an amazing young woman who deserves better parenting.

The book is filled with hopelessn Arthur Fleishmann's treatment of Carly is disgusting at best. Even after the miracle of her demonstrating her intelligence it is not enough for him. The only reason I gave the book 2 stars was for Carly. She is quite remarkable despite the poor parenting inflicted on her. And my personal opinion about how they handled the attack on Carly was abusive within itself. Dec 02, Holli Keel rated it liked it. I wanted to like this book more than I did.

Carly's story is amazing, and it should definitely be told. But something about her father's telling of it didn't work for me. He went on and on about how horrible and difficult their lives were because of Carly's condition autism. While I sympathize and empathize a bit, too , it bothered me for two reasons.

I'm sure Carly doesn't enjoy knowing that her father complains about her for an entire book. This family appeared to have a nanny and the I wanted to like this book more than I did. When did Mr. Fleischmann actually have to deal with Carly? Most parents of children with autism get little to no respite. So it was hard for me to relate to their predicament, since it seems they got so much more help and support than anyone I know of.

Though I admit, I don't know the severity of her condition nor have I lived their life, so it could be as bad as he implies. Though frankly, it sounded like the mom was the one who dealt with Carly while the dad went off to work every day, anyway. So, I just didn't understand why he hit that point home so hard.

I think it would have been more genuine if the mom had written the book instead. And the book could have used a more diligent editor. There are parts that get repeated in multiple chapters that could have been fixed by an editor quite easily. With that said, Carly's story is inspiring. That her family, therapists, and Carly herself stuck with things so long to get to the point where she could communicate is amazing.

She went through a lot of heartache In fact, there's a heartbreaking chapter that deals with a parent's worse nightmare - sexual abuse. I would say that it's definitely an inspiring story worth reading, despite my general criticisms of the book. I've read all three and really enjoyed them. Each author has brought their own 'version' of Autism and Autism spectrum to the written page.

But Arthur Fleischmann and his daughter Carly Fleischmann bring more than an imagined protagonist to the written page. Carly's Voice is an absolutely riveting memo There have been many fiction books released that feature an autistic protagonist - The Curious Incident of the Dog in the Night Time, Memoirs of an Imaginary Friend and just recently Love Anthony.

Carly's Voice is an absolutely riveting memoir recounted by a father and his autistic daughter. Arthur and his wife Tammy are overjoyed when they give birth to twin daughters. With son Matthew their family is complete. Taryn meets her milestones and thrives Carly is non verbal and severely autistic.

What follows is an exhaustive tale of appointments, diagnoses, therapies, frustrations, and more. Mom Tammy is fighting cancer as well.

Carly’s Voice: Breaking Through Autism

I just could not even begin to fathom what the Fleishmanns went through. Arthur and Tammy are tireless advocates; determined to do whatever they can to help their daughter. Three short words must suffice to explain a tome of weird behaviours and limitations. It's a shorthand for Carly-is-different-she-acts-in-odd-ways-she-loves-taking-off-her-clothes-especially-if-what-she-is-wearing-has-a-spot-of-water-on-it-she-likes repetitive-motion-like-that-of-a-swing-she doesn't speak.

We didn't know what Carly knew and what she was incapable of knowing. She made odd movements and sounds and covered her ears when it was noisy. She cried often. And she never, ever stopped moving. Carly types Help Teeth Hurt. Although Carly was able to point to pictures for what she wanted, no one had any idea that she was able to communicate in this fashion.

And at last Carly has a voice - she is finally able to 'speak'. But Carly's story doesn't end there - her fight to control her body, her desire to live like any other teenage girl, her family's dedication to helping Carly be the best she can be is an ongoing, uphill battle. And you won't believe the places it's take her Sometimes its just inertia.

But we keep sight of Carly's dream to be accepted. She wants to live life fully, accomplish great things, and not be pitied. She just wants to be understood. What else can we do? We get up in the morning when the alarm goes off. And never accept 'no' or maybe. I was so humbled and inspired by Carly. As I type this up using all of my fingers, I am struck by the image of Carly labouriously typing one letter at a time with one finger while trying to control her body's spasms.

Carly is an inspiration to all, but especially to those who are living with, coping with or touched by autism. For those who haven't got a clue - it's an eye opener. Highly recommended. Jun 04, Susan Hatch rated it it was amazing. This was probably the best book I've read in a long time. I was lead to a YouTube video on Carly by a friend and that lead me to this book. This book is about a young girl, a twin in fact, who suffers from autism. And not her twin, sadly.

Her parents were amazing supports to her and tried every type of education they could get. The dad often lay beside Carly at night to keep her calm but she was so disturbed in her sleep patterns that he got little sleep.

Suddenly everyone was aware at how much she knew and could communicate. Her vocabulary is incredible. Her humor was something I'd like to have. She needed a voice and for her bat mitzvah she asked Ellen DeGeneres to be her 'voice' and read her speech. She's been interviewed my Larry King and probably others. I came away with a total different view of autism.

Not that I could handle such a child but I now understand them so much better. I suggested it as a summer read to our book club as well. I would highly recommend this to everyone. May 19, Emilybrooks89 rated it it was amazing Shelves: This book reaffirms what I already believe as an educator working with children on the spectrum--that they are smart and capable and that we have to encourage them to get their voices heard.

Carly's story isn't remarkable because she is the only smart nonverbal person with autism. There are many smart people whom we underestimate because of their differences. However, she is one of the few to whom people are listening. Jun 06, Kerry rated it it was amazing. My rating is for the storytelling more than the writing. As the parent of a nonverbal child with autism, so much of these experiences mirror my own. And Carly's breakthroughs and progress give me hope for my own daughter.

This book is honest, and because of that, it was hard to read at times, but it's a better book for the lack of sugar coating. The topic of this book was interesting, and I wish I could say I'd liked it more. Unfortunately, it had some major issues that made me, as an autistic adult, very uncomfortable with the book. The story of how Carly Fleischmann learned to communicate by typing on a computer, after years of being unable to communicate with language due to her motor issues that prevent writing and speech, was interesting and important.

However, having the story filtered through her father was Fleis The topic of this book was interesting, and I wish I could say I'd liked it more. Fleischmann's father, Arthur, seems at least as interested in telling us how much it sucks to raise a child with autism as about his daughter's achievements. The entire first half of the book, in fact, is devoted to this: Fleischmann's eventual ability to communicate, and the amount of time devoted to her early childhood seems to serve little purpose except to emphasize how much Arthur feels like a victim of autism.

The second half of the book is better, and is actually worth reading in my opinion. However, Arthur's desire to make the story about himself, and about his and his wife's victimhood, is still upsetting. In a perfect world, I would have much preferred to read a version of this book written by Ms. Given that her slow typing speed, and the fact that she was busy with school at the time it was written, that might not have been possible, but a book co-authored by her and the therapists she was closest to would have been better.

Even Arthur seems to admit that she was closer to her therapists than her parents, especially in the early days of her communication, perhaps because she spent more time with them and they were more willing to treat her as a person.

Carly's Voice: Breaking Through Autism

In fact, she was communicating with them for months before she was willing to do so with her parents. Surely they could have done a better job of writing a book about her than Arthur managed. In any case, I found it frustrating that Arthur made relatively little attempt to explain Ms. Fleischmann's descriptions of her experiences throughout the book. The short epilogue written by her did a better job of explaining what she actually felt than hundreds of pages by her father.

An additional concern I have, though I'm not sure how to feel about it, is Arthur's portrayal of applied behavioral analysis ABA therapy. It seems clear that ABA therapy was a huge help for Ms. Fleischmann, but I also got the impression that she found it dehumanizing, something that is glossed over in the text. I know that many autistic adults who experienced ABA therapy as children have serious reservations about it, but from reading this book, one would get the impression that it is a perfect "silver bullet" for all autistic children.

Not related to autism, but contributing to my negative feelings about the book, was the fact that Arthur comes off as an incredibly entitled upper-class person with no real recognition of or concern for the amount of economic privilege his family has. If Arthur's description is to be believed, his daughter's autism is a huge financial pressure on him and his wife, and they struggle to afford her treatment and need to max out their lines of credit and so forth.

Despite this, though, they somehow seem to be living an incredibly well-off, upper-class life throughout the book, with multiple expensive family vacations most of which they don't take their autistic daughter on , trips to very fancy restaurants, a bat mitzvah for which they rent out a hotel conference center and restaurant, and so forth. Likewise, Arthur's description of how he and his wife managed to get Ellen DeGeneres to read Carly's bat mitzvah speech involves them both having a huge number of well-connected social and business connections, some of whom just happen to own businesses relevant to their plans.

Yet Arthur shows no awareness that this is unusual, or that the average family would not be able to pull something like this off. Arthur's entitled upper-class nature becomes most obvious, however, in the story of his attempt, along with the parents of several other students at the boarding school for autistic children that his daughter attends, to establish a private group home in Toronto just for their children.

Even more than the Ellen story, this depends strongly on their having friends who just happen to own relevant businesses, but one doesn't get the impression that Arthur is aware that what he is doing would be far beyond most families' financial reach. However, he does whine, quite a lot, about the presence of other group homes in the neighborhood where the Fleischmanns and the other families will be completely renovating a group homeand displacing its current residentsfor their children.

He does this without acknowledging the irony that he's also upset they can't get a group home in a nicer neighborhood because other upper-class people like him have gotten them banned in their neighborhoods: Apr 06, Lydia LaPutka rated it liked it.

This book was hard to rate because the information was great but the delivery was not so great. Carly's story is certainly one written to inspire and give hope to other parents who have children with autism, particularly those children who are non-verbal.

I absolutely admire and honor what this family has accomplished! The message, "Don't give up. I do believe that oftentimes the abilities of disabled students are underestimated. It's a tragedy, really. I enjoyed the fact t This book was hard to rate because the information was great but the delivery was not so great.

I enjoyed the fact that Mr. Fleischmann was willing to explore his failings, doubts, etc. All parents have flaws. I can't even begin to understand what these parents went through in rearing Carly. The fact that they stayed together was incredible. I loved that they were very realistic in how much they could handle. Carly full-time?

But whatever they pursued for Carly, they did it full-force. What made the reading difficult was the lack of a timeline. It seemed to bounce around, and I would get confused as to how old Carly was when different things were happening. This could have been solved easily by including a timeline with age, school, etc.

Or, maybe the chapters could have been broken down that way. Some parts in this book were simply unbelievable.

But I guess that is part of why the story has been told. To have a non-verbal autistic child with extreme behavior suddenly begin typing at 10 and able to communicate. But what made it questionable is how she would never type for family, only for certain therapists.

Doesn't that beg the question could they be doing the thinking and typing for her? I know I could do extensive research online and on youtube about this, but I simply don't have the time.

I felt the book left that open to debate which is very odd! How can parents of a minor receive so little information about what happened?

And then, while explaining her allegations, the dad decides to mention that Carly has been known to lie before. Why wasn't that brought up much earlier? Again, doubt seeps in, and Fleischmann did little to prove the case.

Could the accusations have been Carly's way to guilt trip her parents into keeping her at home more? Another unclear aspect was if any of Carly's typings were voiced.

It only mentioned a machine at the end that would speak what she typed. Did she use it often?

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If so, when? I will probably be raked over the coals for stating these things, but I am just writing my reactions, how I felt as the reader. The author needed to make a more powerful case for Carly's ability.

It all seemed so vague. By the end of the book, was she typing in front of her family members? If everything in the book isl true, then I'm an idiot. But then, the father should have been more convincing in his writing and left me absolutely certain about who Carly is, what she has been through, and what she can do.

I would love to hear from Taryn now. What was her experience as the sister of Carly. That's a tale worth reading! Mar 27, Julie O rated it it was amazing. Early reviews of Carly's Voice tout it as a "must-read for those living with autism". I personally place this book amidst the many other great memoirs I have read - and I have no doubt it will eventually become one of the big celebrity memoirs, too. For me, a huge part of the book is how it depicts a very real and beautiful family story.

Picture the Fleischmanns standing together, arms linked in a tight, not always comfortable, circle. Five people looking in at each other with intelligent, compas Early reviews of Carly's Voice tout it as a "must-read for those living with autism".

Five people looking in at each other with intelligent, compassionate, and sometimes very tired and very sad, eyes.

They work to solve the problems at hand and take time to celebrate the joys and blessings under their roof. The miracle is how they then turn their eyes outward to work with and advocate for others in need - and not just those on the autism spectrum, but anywhere help is needed. Carly once wrote about tzedakah because she knew of it firsthand; because it was something she, her parents and siblings had lived. Another amazing thing about this book, about this girl, is how by the time Carly finds an outlet for her voice I can't say "finds her voice" because she too clearly was born with that intact she expresses herself without hesitation, without neuroses, without the guile and self-deprecation so common to those her own age.

It's not that Carly isn't aware of how the majority of teenage girls communicate, it's just that she eschews it in her own form of self-expression. This is a girl on a mission and Carly instinctively knows how to be persuasive and how to get a point across.

Carly also knows how to make you laugh, how to explain complex things, and how to lay bare an inner life in almost poetic terms. One of my personal favourite things is the way she signs her letters - so revealing, so impactful, and just so freaking cute.

Arthur's style is straight-shooting, engaging, and witty. Anyone with a family can relate to and learn from their experience. Don't miss this treasure. May 05, Bob rated it it was amazing. I wasn't looking for this book, it just caught my eye one evening as I was walking in Chapters with my kids. The book seemed inspirational, and I was in the mood to be inspired. I don't know anything about autism nor do I know anyone who has autism, yet I couldn't help but read through this book so quickly.

I looked forward to every page as the Fleischmann family took on the challenges of living with Carly. I also enjoyed Mr. Fleischmann's honest writings, his descriptions of personal feelings, I wasn't looking for this book, it just caught my eye one evening as I was walking in Chapters with my kids.

Fleischmann's honest writings, his descriptions of personal feelings, the struggles of his wife. I found the story and the writing style kept me glued to the book until I could finish it. I loved the story of Ellen DeGeneres reading Carly's letter and yet the story of Carly being abused was heartbreaking. The sections where IMs from Carly are mixed in here and there in the story, a nice touch. Also, I liked that Carly wrote the ending chapter, and her writings are insightful yet humourous.

If you deal with autism, I suspect this book can be quite useful. But even if you don't deal with autism, you can't help but be touched by this story. Apr 10, Mariamilz rated it it was amazing.

I was looking forward to reading this book to find out how the "family and autistic child" really feels. We see from one end. We are NOT alone. There are resources out thete, but you need to tee educate yourselves and get the assistance you need. When is your next book coming out? Apr 12, Jalon Fowler rated it it was amazing.

Thank you to the Fleischmann family for candidly sharing their journey! I am so happy that Carly found her inner voice and really believe this to be one of the most influential and amazing stories I have ever read! Apr 06, Jacqueline rated it it was amazing. Reads like a suspense-novel! Such an eyeopener on autism! Highly recommend this book! May 11, Lexi Magnusson rated it it was ok.

Please stop recommending this book to me. Jun 05, S rated it it was amazing. This book is a real page-turner. Heart-wrenching in its honesty, the reader is taken through the lives of a family living with a child now teen with a poorly-understood diagnosis.

The reader feels Mr. Fleischmann and his wife's frustrations, anger, and joy as he tells the story of his nonverbal and autistic daughter, who it was thought would never understand the world around her, spontaneously begin to type.

Through her communications her therapists, family, and the reader learn what it feels This book is a real page-turner. Through her communications her therapists, family, and the reader learn what it feels like to be as severely autistic as she is. We also learn the extent to which she understands the world around her. I saw a profile of the Fleischmann family on YouTube, and liked her Facebook page and followed her on Twitter shortly thereafter.

She's a witty teen with a bit of teen attitude too , and this book was the perfect companion to what I knew of Carly and her family. I was impressed with the inclusion of Carly's mum and other siblings in the story, as sometimes these important characters are left out of memoirs of this nature. Carly contributes to the book herself, thereby giving both sides of the story.

I know several people with autism, and still many more with other intellectual disabilities, so I think I approached this book with an open and somewhat enlightened mind. I don't see Carly as amazing, but I see her accomplishments that way. I'd really like to chat with her if given the chance; she seems to be both a very wise and very intelligent person. This is a great book to read, regardless of one's connection or lack thereof with autism.

Make sure you get yourself a copy. Always looking for ways to understand my Bestus Buddy Broc Borras. Interesting to hear and see different sides of autism and how blessed we are to have Broc in our life. I wish I could see the world through his eyes. Nov 15, Annie Feng rated it it was amazing Shelves: I spent 8 hours today starting and finishing this book, and I am truly overwhelmed. It's for people like Carly, not just ASD individuals, but mental abnormalities in general have been neglected for long enough.

This book really does reaffirm all my reasons to pursue neuropsychology. On the other hand, the book had no general theme or thesis. A lot of the book I spent 8 hours today starting and finishing this book, and I am truly overwhelmed.

A lot of the book was foggy, and the chronology is a little warped. Many events were smudged by hindsight and that signature parental bias and protectiveness when it comes to their children. It's brilliant. It's what makes the book real. The whirlpool of descending chaos, the messed-up-ness of life, the overwhelming tornado of responsibilities and suffocatingly limited options. It's so clouded with emotion that it's true.

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Organized chaos only exists in fictional novels, hence why I tend to avoid them. This was such a multifaceted journey that I am truly amazed that it's been captured so completely in only pages. It's a beautiful sad and happy story.

It made me laugh, made me cry, and was just so inspiring So thank you for allowing me to gluttonously devour in a few hours the wisdom you've accumulated in your lifetime. Apr 18, Amanda rated it really liked it Shelves: It was definitely an interesting journey.

The author is Carly's father and steps you through her early childhood and diagnosis and the struggles a parent faces when bringing up a child who doesn't understand anything going on around them who will randomly scream and is barely able to accomplish simple tasks like getting dressed. Throughout all of Carly's childhood her teachers are trying to find ways to help her communicate her basic needs and feelings, but it's not until she is entering her teen It was definitely an interesting journey.

Throughout all of Carly's childhood her teachers are trying to find ways to help her communicate her basic needs and feelings, but it's not until she is entering her teen years that starts typing. That's when her family realizes that there is actually a very intelligent girl hidden behind the autism. She understands and absorbs everything around her, and through typing she is able to communicate with her family and the people in her life.

This book was very eye opening about what autism is and what it's like living in and around the body of a person with autism.

To be honest, I was expecting a lot more from Carly's perspective, but it was still a very good read, and fascinating to see the mind behind a person that society looks at as an empty shell.

Apr 02, Amy rated it liked it. This book has given me a lot to think about. I appreciate the honesty of Arthur Fleischmann and think his and his wife's journey and feelings as parents of a non-verbal autistic are important to share. But that is not the main message of this book. The message to really take in is Carly's. They are locked inside themselves, unable to speak, unable to ask for help, and all this t This book has given me a lot to think about.

It is chilling to imagine them screaming inside at us while we just go about our days around them without any awareness of what they are going through. Carly Fleischmann can change the entire course of Autism Treatment.

Since reading this book I have really thought about what I say in front of my son. Thank you Carly. You are a true hero! This is an incredible book! Carly Fleischmann is an amazing young woman who lives with severe Autism, and despite that, she is such an inspiration to all.

Her first person account of what day-to-day life is like for her is so insightful. I can't wait to see how influential this determined young will become.

Carly's Voice

She is destined to do big things and I am so impressed with her accomplishments already. This girl has touched my heart and I am forever changed. People just look at me and assume that I am dumb because I can't talk or because I act differently than them. I think people get scared with things that look or seem different than them.

It feels hard. In the hour or two it took to write her pointed response, Carly helped redefine herself and possibly all people living with autism who had not yet found a way to communicate. At the same time, it raised amyriad of questions about how we might help Carly put out the fire.

For Carly, it was liberating to be able to unburden herself, to explain why she behaved the way she did. She helped us see her as a person locked in the box that is autism. For us, the afternoon was emotionally draining. On one hand, gaining insight provided us with perspective and hope; hope that we could find ways to help.

But being confronted with the raw suffering our child endured daily for so many years was far more heartbreaking than receiving the diagnosis ten years before.

Ignorance had been a gift. As if to not leave us or the viewing audience with only the heaviness of her struggles, Carly went on to talk about her favorite memories of growing up. Some other memories I had was crawling in to my sisters bed at night after I woke up and she let me sleep with her. She cuddled me till I fell asleep. I am so lucky to have her. In general, she only liked physical contact on occasion.

She seldom initiated affection, although we felt drawn to give her hugs and kisses when she was curled up on the couch or when a mischievous look crossed her face. In particular, Taryn loved to jump on Carly at night and squeeze her in an embrace, telling her how cute she is and whispering in her ear.

I could tell from the satisfaction on Taryn's face, the way her large brown eyes smiled, how much it meant to hear that Carly adored her. While Carly had confessed how sorry she felt for stealing attention from Taryn or breaking her things, I have never heard Taryn complain about her sister's oddness or the impact she has had on our family life. Perhaps it's bottled up inside, but I prefer to believe that their love is greater than the burden of autism.

The day after the filming, Avis phoned to say they had looked through the rushes and were thrilled. The story would air later in the week. She told Tammy not to be surprised if we received a call from ABC, as the two networks often shared stories - especially those of medical breakthroughs and human interest. With the filming done, the last of the bat mitzvah thank-you notes written, and life returning to a calmer pace, Tammy and Taryn took off for a visit to Los Angeles.

Matthew plugged away in his last year of high school; Carly returned to her part-time respite and part-time homeschooling; and I returned to work. There was something utterly exhausting about the past month but also utterly stirring. Carly had written more than she had in the previous twelve years of her life, and we were seeing facets of her personality we had never imagined.

We felt the CT V news report would be a fitting conclusion to Carly's coming of age that had started with her bat mitzvah preparations. The day the CT V segment was set to air, Tammy was lounging by her cousin's pool. It was not hot yet in LA, but sunny and clear.

With a hectic week planned of visiting friends and sightseeing with Taryn, she was enjoying the newspaper and a coffee and just not talking for a while. Her phone rang and she looked quizzically at the unfamiliar New York area code. He had not seen the footage yet; typically they receive only a typed transcript prior to the Canadian airing of shared segments. At one point in the questioning about Carly's diagnosis, her breakthrough in writing, her inability to speak, and all the efforts we had made on her behalf, the ABC medical reporter John McKenzie said to Tammy, "I'll be honest.

We don't believe Carly has autism. Stephensen's diagnoses. They're filed in the bottom drawer of my cabinet in the basement," she said.

I drove home from my office and rifled through Tammy's library of medical files. I found several reports from various doctors we had seen over the years, including the original diagnosis, "Carly presents as a child whose presentation in all three domains, stereotypic behaviors, communications skills and social interaction skills, falls within the spectrum of Autism - Pervasive Developmental Disorder.

Carly is a child who avoids establishing eye contact, who is picky about the food she eats and will often spend her time spinning items and rocking back and forth. She makes sounds repetitively and flaps her hands.

Carly continues to avoid eye contact and to resist physical contact with others. Developmentally, Carly shows developmental delays of global nature.

Years flooded back. I remembered reading these documents carefully, analytically. I had scrutinized the language trying to understand what they had meant. I knew why I had had such little reaction when Carly was first diagnosed. Who could have known what delayed would mean? Who could have known the physical manifestations of autism? The grating, grinding, wearing effect it would have on our life?

I'm glad no one told us. It was merciful that Dr. Stephensen's report didn't say how we'd spend years not sleeping, washing feces off walls, andpraying for a real life, or death, or some way out. It was a life of filial piety in reverse - at times quite literally carrying our daughter on our backs.

Unconditional love is a luxury; even parents have their limits. Ours was tested not in months and years but in seconds, minutes, hours, and days of physical labor, frustration, and heartbreak. Later that afternoon, after ABC received confirmation that Carly's diagnosis was legitimate, the phone rang again. They had, by this time, also been given access to CTV's footage of Carly, her typing, and our interviews. They were intrigued and wanted to run their own segment. In fact, they believed Carly's story was of such interest, they would delay airing it several days in order to air promotional spots and recut a longer segment than the one that would be running on CTV that evening.

I phoned Tammy, who confessed that while she was excited by the opportunity, she was a little disappointed that ABC's medical staff didn't come up with another hypothesis on Carly's condition.Taryn was happy and peaceful; Carly cried incessantly, earning her the nickname Cryly.

In our hearts, we had hoped to find a magic pill that would turn Carly into someone else; someone who could speak, play, and be with us. But these playful pictures captured only moments in time. Although Carly was able to point to pictures for what she wanted, no one had any idea that she was able to communicate in this fashion.

Carly’s Voice: Breaking Through Autism

I appreciate the honesty of Arthur Fleischmann and think his and his wife's journey and feelings as parents of a non-verbal autistic are important to share. Months melted into a slurry, with little to show for it. No sooner up, she would strip off her pajamas a skill in itself, her developmental pediatrician reminded us , rip off her diaper, and jump about her room barking ahhhh ahhhh ahhhh.

On occasion, Carly could be all smiles and giggles.

NELIA from Provo
I relish exploring ePub and PDF books monthly . Browse my other posts. I absolutely love strongman.
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